Clinical Trial Suggests Existing Drug May Treat Common Lupus Complication

Despite existing treatments and advancements in medicine, 10–30% of people with lupus nephritis reach end-phase kidney failure. As this condition can be fatal, patients with lupus nephritis are in need of more treatment options. The positive results of a phase 3 clinical trial led by Richard Furie, MD, chief of rheumatology at Northwell Health, indicate that the drug belimumab (brand name Benlysta) helps manage lupus nephritis. If approved by the Food and Drug Administration (FDA), belimumab wo

The Woman Putting Disability On The Catwalk, And The Cover Of Vogue

A Paralympian who became paralyzed in a shotgun accident, Samanta Bullock has never let a wheelchair get in the way of her thirst for high fashion. A model herself, when Bullock became frustrated by the lack of fashionable accessible clothing, she decided to do something about it. Originally from Brazil but now a Londerner, Bullock created Samanta Bullock (SB) Shop as a marketplace with clothes that “anyone can wear.”

How COVID-19 exposes a disability reporting gap

When reporting on disability, a May 2020 update to the Associated Press Stylebook suggests asking subjects whether they prefer identity-first language or person-first language. But many articles still make presumptions about how disabled people identify and how their disability impacts their lives. Writers and editors say the industry sorely lacks disability representation, even as COVID-19 pushes disability-rights topics like accessibility and mail-in voting to the forefront.

What Happens If You Run Out of Mental Health Meds During the Apocalypse?

Writer and comedian Gaby Dunn, who has bipolar disorder, went camping at a mountain with her then-girlfriend. During the trip, Dunn was asked what she would do if something bad happened. Dunn responded that her bipolar disorder symptoms would act up because she only had “a certain amount of medication” with her. This experience inspired Dunn to create the upcoming Audible Original series “Apocalypse Untreated.”

Animated DreamWorks Series for Kids Adds Disabled Character

The new season of the DreamWorks animated series “Spirit Riding Free: Riding Academy” will feature a disabled character, Eleanor, who is a wheelchair user. Voice actress Cassidy Huff, who has Conradi-Hunermann syndrome, will be voicing the role. According to Huff, her role breaks from the typical disability stereotypes and is a win for authentic disability representation. “Spirit Riding Free: Riding Academy” follows characters Lucky and her friends as they navigate their time and relationships wit

Can Someone Legally Ask Why You're Not Wearing a Mask?

In states and cities across the United States, many people are either encouraged or required to wear masks to help contain the spread of the coronavirus outbreak. While the decision to wear a mask has become a deeply polarized topic in the United States, there are people who cannot wear a face mask due to their health or disability and may need other accommodations. In conversations and debates about face masks, you may have heard laws and policies like the Health Insurance Portability and Acco

This Disability Activist Wants to Make the Entertainment Industry More Accessible

Whether it is your true passion or a fleeting thought, many of us have wondered what it would be like to star in a movie or work in the entertainment industry at some point in our lives. But, for people with disabilities, pursuing work in the entertainment industry is not just based on talent. Inaccessibility and harmful stereotypes about disability can be major barriers, on both sides of the camera. Keely Cat-Wells is one of many disability advocates fighting to make the entertainment industry

How One Rare Disease Research Company Has Adapted to COVID-19

For many rare disease patients, the wait for treatment and research advancements can feel like a never-ending process. This wait is made more complicated by COVID-19, which has caused barriers for both research options and people who want help managing their illness. Some research has halted during the pandemic. Cure Rare Disease is one of the many research companies learning to adapt to COVID-19. Cure Rare Disease founder and president Richard Horgan and his team are researching custom therape

I Have Vasculitis. COVID-19 Is The First Time I Have Hope.

The day after my 20th birthday, I was hospitalized with severe inflammation and my panic was rising. I was sick for over a year by that point with an illness that caused me to have anaphylaxis-like symptoms that caused my oxygen saturation level to fall. My vision also became blurry when exposed to triggers like cold or stress. A doctor diagnosed me with systemic urticarial vasculitis, an illness that I had never heard of in my life.

On Survival: My Grandma and I Are Both High-Risk | Jewish Women's Archive

For the past few years, I’ve maintained a relationship with my grandma mainly by talking on the telephone, which is a point of regret on my end, although it has been for my own health. When I was eighteen (I’m 22 now), I became extremely ill with an autoimmune disease called vasculitis, which causes my blood vessels to become inflamed. I’m still not sure why, but I get very sick when I travel. But now I regret not doing so more, even if it had triggered an autoimmune disease flare, because I don
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